鍋ュ悍搴旂敤鏁版嵁涓虹爺绌跺憳甯︽潵鏈洪亣鍜岄殰纰?/b>
鏃ユ湡:2019-07-08 15:29

(鍗曡瘝缈昏瘧:鍗曞嚮)

G7rU4)(qDu5iMj@z%JT%))kL

Data from health apps offers opportunities and obstacles to researchers

)h+YCicp!Rz~YxB6He,

鍋ュ悍搴旂敤鏁版嵁涓虹爺绌跺憳甯︽潵鏈洪亣鍜岄殰纰?br />

L0SGfP=!yhZWJ

Researchers are eager to tap into the steadily expanding pool of health information collected from users by products like Fitbit, Clue, and the Apple Watch. But while these datasets could be a scientific treasure trove for scientists, they also pose ethical challenges that need to be addressed.

wBN^R.cut27IEnyF7J

鐮旂┒鍛樻杩垏鍒╃敤Fitbit銆丆lue鍜孉pple Watch绛夊仴搴峰簲鐢ㄤ骇鍝佹敹闆嗗埌鐨勪笉鏂ǔ瀹氬闀跨殑鐢ㄦ埛鍋ュ悍淇℃伅hzoH[K&@6b_4銆傝櫧鐒惰繖浜涙暟鎹簱瀵圭瀛﹀鏉ヨ鍙兘鏄竴浠界瀛﹀疂搴擄紝浣嗗悓鏃讹紝瀹冧滑涔熷甫鏉ヤ簡闇€瑕佽В鍐崇殑閬撳痉鎸戞垬#YEulDj8SViFo#銆?br />

r+1+4AsR2Q

"There are huge opportunities. I think that's the attraction," says Ida Sim, director of digital health for the Division of General Internal Medicine at the University of California, San Francisco. Sim explains that part of the appeal for scientists is that the apps and tech are designed to appeal to the general public. A commercial app or device with an easy, attractive interface is primed for long-term use by far more people than can usually be included in a research study. "As opposed to a clunky research wristband, which is ugly, and people won't wear it," she says.

#kIjqx.PitrGB6V!

鈥滄垜浠潰涓寸潃宸ㄥぇ鏈洪亣锛屾垜璁や负杩欐槸鍏剁壒鐐逛箣涓€锛屸€濅綅浜庢棫閲戝北鐨勫姞鍒╃灏间簹澶у鍐呯缁煎悎閮ㄧ殑鏁板瓧鍋ュ悍涓讳换鑹捐揪路瑗垮锛圛da Sim锛夎閬?span style="display:none">yj)Dl22.thPS^W@g+~銆傝タ濮嗚В閲婇亾锛屽簲鐢ㄥ拰绉戞妧鏃ㄥ湪杩庡悎澶т紬锛岃繖鏄惛寮曠瀛﹀鐨勫湴鏂?span style="display:none">LlMcoCDh7W銆備竴涓晢涓氬簲鐢ㄦ垨璁惧锛屽叾鐣岄潰绠€鍗曘€佹湁鍚稿紩鍔涳紝宸插彲浠ヤ负澶т紬闀挎湡鏈嶅姟锛屽叾鏈嶅姟浜烘暟姣斾竴椤圭爺绌舵墍娑夊強鐨勫彈璇曡€呮洿澶?span style="display:none">+y@AQZcS!@NA|銆傗€滆繖涓庣爺绌舵墍娑夊強鐨勬棦绗ㄩ噸鍙堜笉缇庤鐨勮〃甯︾浉鍙嶏紝娌′汉鎰挎剰甯﹁繖绉嶈〃甯︼紝鈥濆ス璇撮亾&g-I*q@9lpD+Eyse+aq銆?/p>JCO^UX|_Vel

鍋ュ悍搴旂敤鏁版嵁涓虹爺绌跺憳甯︽潵鏈洪亣鍜岄殰纰?jpg

7oLqStr8^|0IkYw#E)v


WcXRMaD7635K;

Researchers are taking advantage of the better design of their corporate counterparts, and in some cases, companies are especially eager to collaborate. This spring, the period tracking app Clue offered funds to researchers hoping to use Clue users' cycle tracking data to answer scientific questions. The company had previously provided data to researchers who approached it directly, but the grants marked a formalization of their existing program.

qQ@)+R3)~zp;

鐮旂┒鍛樻鍒╃敤浼佷笟鍚岃璁捐鐨勬洿濂戒骇鍝侊紝鍦ㄦ煇浜涙儏鍐典笅锛岃繖浜涗紒涓氫箰浜庡悎浣?span style="display:none">3a#IHWYQKR25=銆備粖骞存槬澶╋紝缁忔湡璺熻釜搴旂敤Clue涓虹爺绌跺憳鎻愪緵璧勫姪锛岃繖浜涚爺绌跺憳甯屾湜鍒╃敤Clue鐢ㄦ埛鐨勭粡鏈熻拷韪暟鎹В绛旂瀛﹂棶棰?span style="display:none">IXH#duWS;]5,&銆傚湪姝や箣鍓嶏紝璇ヤ紒涓氬凡鍚戠洿鎺ヨ仈绯荤殑鐮旂┒鍛樻彁渚涗簡鏁版嵁锛屼絾杩欎簺鎷ㄦ鏍囧織鐫€鐜版湁璁″垝姝e紡钀藉疄g#4Q]iW-yqWu0B7W銆?br />

pBsym7g.xLV9bk=gT

"It's been an evolving conversation," says Amanda Shea, research collaborations manager at Clue. "Our dataset is big enough now, and we have more of the proper protocols in place can ensure users aren't at risk through data sharing, that we can more actively participate in research."

Q!22b57eLm,EDj

鈥滆繖鏄竴鍦轰笉鏂彁鍗囩殑瀵硅瘽锛屸€滳lue鍏徃鐨勭爺绌跺悎浣滅粡鐞嗛樋鏇艰揪路瑗夸簹锛圓manda Shea锛夎閬?span style="display:none">yDyg!VirVZ3;|I銆傗€滅洰鍓嶏紝鎴戜滑鐨勬暟鎹簱宸茶揪鍒扮浉褰撳ぇ鐨勮妯★紝鏇村纭繚鐢ㄦ埛涓嶄細鍥犳暟鎹叡浜€岄潰涓撮闄╋紝涓擟lue鍛樺伐鍙互鏇寸Н鏋佸弬涓庣爺绌剁殑鍗忚涔熷凡灏变綅.d!K7,|Gmxf#3#PR|(l銆傗€?br />

~|LltSzlvKYM2(8

Unlike academic researchers, app companies like Clue are explicitly designed and have the resources to collect and maintain large amounts of data. On the other hand, commercial apps usually aren't designed for research, which demands predictable, transparently collected, and granular data. Sometimes, that means app-generated information is actually less useful to researchers, says Olivia Walch, a postdoctoral student studying mathematics and circadian rhythms at the University of Michigan.

j3sIvlXSIA@8

涓庡鏈爺绌跺憳涓嶅悓锛屽儚Clue杩欐牱鐨勫簲鐢ㄧ▼搴忓叕鍙歌璁℃槑纭紝涓旀嫢鏈夋敹闆嗗拰缁存姢澶ч噺鏁版嵁鐨勮祫婧?span style="display:none">;a12ohQc.xGig銆傚彟涓€鏂归潰锛屽晢涓氬簲鐢ㄧ▼搴忛€氬父涓嶆槸涓虹爺绌惰€岃璁$殑锛屽洜涓虹爺绌堕渶瑕佸彲棰勬祴锛岄€忔槑鏀堕泦鍜岀粏鍖栫殑鏁版嵁&rb_hA+Tn!.]mkMQ5g[銆傛湁鏃讹紝杩欐剰鍛崇潃搴旂敤绋嬪簭甯︽潵鐨勪俊鎭疄闄呬笂瀵圭爺绌跺憳骞舵棤澶氬ぇ鐢ㄥ锛屽瘑姝囨牴澶у鏁板鍜屾樇澶滆妭寰嬩笓涓氱殑鍗氬+鍚庡鐢熷ゥ鍒╃淮浜毬风摝灏斿笇锛圤livia Walch锛夎閬?span style="display:none">[Sc%8cYV|k銆?br />

Z=4s9|h=S,S)sU

璇戞枃灞炲彲鍙師鍒涳紝浠呬緵瀛︿範浜ゆ祦浣跨敤锛屾湭缁忚鍙鍕胯浆杞?/strong>

skfL#ttQP%!@,~HM^5Ot%1Mu%zhKNX8(C.ze7L91_^oz
鍒嗕韩鍒?/div>
閲嶇偣鍗曡瘝
  • appealn. 鎭虫眰锛屼笂璇夛紝鍚稿紩鍔?n. 璇夎瑁佸喅 v. 姹傚姪锛岃瘔
  • conversationn. 浼氳瘽锛岃皥璇?/span>
  • participatevt. 鍒嗕韩 vi. 鍙傚姞锛屽弬涓?/span>
  • collectv. 鏀堕泦锛岃仛闆?v. 鎺ㄨ adv. 鎺ユ敹鑰呬粯娆?/span>
  • advantagen. 浼樺娍锛屾湁鍒╂潯浠?vt. 鏈夊埄浜?/span>
  • opposedadj. 鍙嶅鐨勶紝鏁屽鐨?v. 鍜?... 璧峰啿绐侊紝鍙嶆姉
  • internaladj. 鍥藉唴鐨勶紝鍐呭湪鐨勶紝韬綋鍐呴儴鐨?/span>
  • ethicaladj. 閬撳痉鐨勶紝浼︾悊鐨勶紝姘戞棌鐨?/span>
  • devicen. 瑁呯疆锛岃璁★紝绛栫暐锛岃澶?/span>
  • corporateadj. 绀惧洟鐨勶紝娉曚汉鐨勶紝鍏卞悓鐨勶紝鍏ㄤ綋鐨?/span>